Andrew Gwynne, MP for Denton and Reddish, will undertake a charity parachute jump to raise funds for Florence Croce, a five year old from Dukinfield with a rare life-limiting illness.
Florence has Gangliosidosis GM1, an inherited disorder that progressively destroys the brain and spinal cord and which will slowly take away her ability to walk, talk and swallow.
Gwynne met with Florence’s mum Jenny in October and will be meeting Florence herself later this month ahead of the jump in May.
Florence lives in Dukinfield with her mum Jenny and big brother Riccardo, who are raising funds so that they can:
- ensure Florence gets the very best treatment possible.
- try to get Florence to America to join the Cure GM1 trials.
- contribute towards the adaptations to Florence’s house so that she can stay with her family as long as possible.
- make memories for Florence, her brother Riccardo and their family.
Andrew Gwynne said:
“Having heard so much about Florence from her mum, I am really looking forward to meeting her soon.
“Florence’s mum Jenny told me about Gangliosidosis GM1, the hideous disease that will slowly take away Florence’s ability to walk, talk, swallow until, eventually, the worst will happen.
“I am terrified of heights but have decided to take part in a parachute jump to raise funds for Florence and would encourage everyone who can to donate to this cause.”
You can read more about Florence and donate here: https://www.justgiving.com/crowdfunding/jenny-croce-fallout