Andrew Gwynne, Labour’s candidate for Denton and Reddish, is encouraging local people to raise funds for Florence, a five year old from Dukinfield with a rare life-limiting illness.
Florence has Gangliosidosis GM1, an inherited disorder that progressively destroys the brain and spinal cord and which will slowly take away her ability to walk, talk and swallow.
Florence lives in Dukinfield with her mum Jenny and big brother Riccardo, who are raising funds so that they can:
- ensure Florence gets the very best treatment possible.
- try to get Florence to America to join the Cure GM1 trials.
- contribute towards the adaptations to Florence’s house so that she can stay with her family as long as possible.
- make memories for Florence, her brother Riccardo and their family.
Andrew Gwynne said:
“A few weeks ago, I had the absolute privilege of meeting Florence’s mum Jenny, who told me about Gangliosidosis GM1.
“This hideous disease will slowly take away Florence’s ability to walk, talk, swallow until, eventually, the worst will happen.
“This is a very rare and little-known condition and I would encourage everyone to find out more and – if they are able – to donate what they can to help Florence and her family.”
You can read more about Florence’s story and find out how to donate here: https://www.facebook.com/fundraisingforflorence/
(Andrew with Florence’s mum Jenny)
(Florence with her mum Jenny and radio presenter Jamie Theakston)